Baby Charlie Gard, who has a rare genetic disease keeping him on life support, has been granted permanent US residence, opening the door to receiving an experimental medical treatment that could save his life.

Gard was born in August with mitochondrial DNA depletion syndrome, and his parents have been fighting to get him access to the care he needs.

His parents raised money to cover the costs of the treatment, but doctors and European courts argued that he should ‘die in dignity.’

Congress has now stepped in, with Gard and his parents being granted residency by Congress.

 

Via CNBC:

The ongoing battle for treatment for Charlie Gard has taken a new turn, with a U.S. amendment being passed Tuesday granting the terminally ill British baby “legal permanent residency,” in the U.S.

Gillian Christensen, press secretary for the United States Citizenship and Immigration Services, told CNBC via e-mail that: “We are aware of the amendment and, should the legislation be passed by Congress, stand ready to act as necessary.”

Charlie Gard’s parents Connie Yates and Chris Gard have been fighting a lengthy court battle against doctors from the Great Ormond Street Hospital for Children in London, who want to switch off their son’s life support. Instead, Gard’s parents want him to seek experimental treatment in the U.S. They lost their appeal in the European Court of Human Rights at the end of June, who refused to intervene in British courts.

President Trump earlier this month expressed his support for the terminally ill baby, offering any help that America might provide.

 

The Charlie Gard case has been a study in the perils of government-run health care, in which medical professionals and court systems determine that a child’s life might not be worth saving.

 

Gard’s parents know what’s best for him, and if they want to try saving his life using their own finances, then they absolutely have that right.

Are you happy for Charlie Gard and his parents? Tell us what you think about this case below!

*UPDATE*

According to the Independent, a High Court Judge ruled on Friday that the parents of Charlie Gard can not take their child abroad without a court order.

The judge also said Mr Gard and Ms Yates cannot take Charlie abroad without a court order, despite efforts by US Congress to grant him permanent residency in the country so he can fly there for treatment, according to Mr Rozenberg.

Whether or not that order is granted, as more arguments are set to be heard early this week, remains to be seen.

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